Why I Work So Hard For Lyme Disease

I reflect in these misty mornings of Autumn’s rapid descent on how magical this season of change is.  The colors, the tonal quality of the bird songs, and the romantic skies of gathering clouds, sweep into Northern New England with such a force.  This year, with heavy rains, it all came upon us so quickly- chilly mornings and geese honking in flight while my zinnias lost their summer vibrance seemingly overnight! Image

But, then again I’ve been out working, lecturing in a whirlwind of passion, in these shimmering weeks of nature’s transition.  I’ve been actually on the road, every single week since mid-March, sharing my recovery memoir and treatment guide, “Out of the Woods; Healing Lyme Disease, Body, Mind and Spirit.”  Though I’ve lapped up every single place I’ve visited, like a sponge, soaking in the ambiance, the stories, the status of the Lyme epidemic, I’ve also skimmed through the seasons, in a way.

A nature spirit at heart, I treasure my garden, walks in the scented forests and swimming faithfully in our local pond.  As a landscape painter, I spend days on end soaking in a locale, as I move its emotional fabric and composition to canvas.  It feeds my spirit to be steeped in nature’s comfort and beauty.

I realize now, in a rare day of repose, that I’m a bit below my sensory quotient of absorption this year.  My work as an author, speaker and Lyme disease advocate has taken me far and wide.  How stunning this journey has been!

I have treasured the places and the amazing people I have visited.  You are beautiful souls, often wounded by Lyme, mismanaged by the health care systems ignorance and yet rich in depth and sensitivity.  It has been a tremendous honor to share my time with you.

For those of you whom have met me in person, you know I am passionate about helping others recover from Lyme disease.  I was wretchedly ill, bedridden, broke and bereft myself six years ago.  I’ve come so far, healed on so many levels and expanded in ways I could never have fathomed, formerly too ill to even feed myself.

I am appalled at how vast the Lyme epidemic is.  From coast to coast, North and South, Lyme has crept into our lives, affecting multiple generations, many lives lost. It is impossible for me to ignore all of you who have been afflicted.

After losing everything I worked so carefully to create in my life- home and marriage, career and income, health and well-being, to Lyme, I know how devastating the ravages of this bacteria can be.  I have walked the very same path as you.

I lecture and work so hard with my writing in behalf of Lyme disease awareness and healing because I want to affect a change for a better future.  I want better diagnostics, an Integrative Health Care system, a Lyme vaccine and annual screenings for us all.  I want our children to play freely outdoors, climb trees and build fairy houses, like I did when I was young, and not get Lyme disease.

If I keep speaking and teaching, sharing and writing, I believe each droplet of goodwill and effort I lend will affect the winds of change.  A momentum will build as we coalesce.  Group synergy can build a web of community and compassion.  My intention to ignite the spiritual dimension of healing in each individual, can in turn stir great healing energy within and without.  Over time and in process, the tides will shift!

I pray that in my lifetime I will witness an end to the Lyme disease epidemic.  The abysmal weakness, the pains, the isolation, the confusion, the losses will be replaced with buoyant joy, vibrant energy, abundant creativity, a caring stewardship of Earth and a return to play and freedom amongst nature- my temple of solace.

As evening settles in, I light the candles, I sit still, listening to the winter winds whisking in on a distant tremolo.  Soon the snows will arrive, blanketing us in whiteness and I will turn within; a time of meditations, writings and contemplation for me.

At this threshold of transition, I bow to each of the four directions.  To the East, I offer my thanks for the vibrant, fresh energy that propelled me far and wide this year.  To the South, I offer gratitude for feeding me so fully with love and acceptance, joy and sharing on each of my ventures.  To the West, I acknowledge your mighty energy of fortitude and endurance to hold me, as I pushed myself physically like I was a youngster.  To the North, I offer my pure respect for your guidance and perfect patience, bringing me home safely each trip and always gracing me with wisdom.

I have been moved deeply by all that I’ve experienced in this magical year.  May my work and efforts bring the ministering of hope and inspiration I aimed for.

God Bless,


8 thoughts on “Why I Work So Hard For Lyme Disease

  1. Thank you again Katina, I read you posts and cry tears of joy and hurt and sadness all in one but appreciate every word you speak! I hope I find my place back in writing soon this post made me feel -why not today!? It takes a pencil and paper, right!? Whether the words come out right they will eventually be or edited to be…. As I begin after 4 long years of fighting and suffering through it all, now ready when everything in every aspect of my life feels broken beyond repair it absurdly can’t hurt to work in me and what I was good at once And want to write from here forward before going backwards….if that makes sense! xoxo

    1. Oh Crystal!!! so happy to hear you are writing….please keep at it, even little one sentence glimmers! Writing is healing and helps us bring our hopes and dreams into reality. I know it is a healing gesture for you and so happy to find you are appreciating my posts and work for Lyme. bless you always, Katina

  2. Your advocacy and voice in the public is powerful and much appreciated. As someone who has always advocated for others, I found myself with tears pouring down my cheeks the other day watching a video of a recent road race here in NH where a relay team of state park employees were wearing Lyme shirts and running for us Lymies – for me. I share your hope that through your work and the many others trying to make this issue visible, that Lyme will finally be taken seriously by the medical community, public health officials and others to prevent the needless suffering that is occurring now.

    Thanks for all you do.

    1. you are welcome and I am so delighted to hear of this wonderful NH relay!!! I am in NH too!! I do hope we will witness the end of Lyme in the near future. Time for the tides to turn.

  3. My son lives in VT. He’s been diagnosed, finally, with advanced Lyme D by a Lyme literate doctor in Lebanon, NH. His primary care physican absolutely denies that Lyme is a real disease, so he’s gone undiagnosed for years. He and his wife have liquidated everything possible, savings, CD’s and 401K’s to pay for meds and have exhaused all 20K+ and have run out of money to pay for more. He’s now off of the meds because of lack of funds. He can’t work. Unemployment has denied him because he’s not available to work. Is there anything out there for him to pay for these meds so that he can continue with them?

  4. Katina, thank you for your writing – I feel so many of your sentiments. I am a health care provider (NP) who aspires (soon) hopefully, to open my own LLNP clinic (in NH) and am attending ILADS next week!
    We need to stop this epidemic – it is devastating – I take 1 step forward and it seems 2 backwards! But I WILL make it! I know I will! ❤

    1. Marie!!!!! look for me, I will be at the author’s table now and then. PLEASE talk to me, I am part of a small integrative medicine practice in NH looking for a NP to join us.
      Yes, we must stop this epidemic——it is atrocious to witness the widespread suffering I have seen over this year of touring. See you at ILADS>

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