Renowned Research Pathologist Dr Alan MacDonald on Norvect Lyme Conference and the late Dr Burgdorfer

One of the most popular Lyme Light Radio episodes of all time was the historic interview Dr Alan MacDonald gave me last spring on the connection between Lyme disease and serious neurological disorders such as MS, ALS, and Alzheimer’s Disease. Dr MacDonald is a veteran researching pathologist who personally knew and worked with Dr William Burgdorfer, the discoverer of the Lyme disease spirochete bacteria, and he brings a wealth of knowledge on the USA’s fastest spreading infectious illness: Lyme disease. He will share first hand insights into Dr Burgdorfer, the early days of Lyme in the 1980’s, and the latest news coming from the Norvect Lyme Conference in Oslo, Norway — neurological illness as pertains to tick borne diseases.oie_14181430n2s8vIE3

With great honor, I welcome Dr Alan MacDonald back to “Lyme Light Radio” this Wednesday December 3, 1pm PT/4 pm ET. Make sure you join us as this will be an important interview, with a truly great man and cutting edge researcher.

Katina Makris CCH CIH

http://www.lymelightradio.com

Pro Football Player Hospitalized With Tick-Borne Illness

Scott Wells, the center for the St Louis Rams, was hospitalized this summer with a bacterial infection caused by a tick bite. The St Louis Post-Dispatch reports that Wells was struck with a mystery illness in June, and lost 20 pounds in four days before doctors were able to diagnose him with ehrlichia.

http://www.stltoday.com/sports/football/professional/tick-bite-sent-rams-wells-to-intensive-care/article_c9f348c7-8803-50af-a20c-e63a2288d92a.html

“Lyme Light Radio with Katina” Celebrates One-Year Anniversary!

standing blk dress

JOIN US ON THIS MOMENTOUS, HAPPY DAY- LYME LIGHT RADIO’S FIRST BIRTHDAY– wow!!

Special anniversary show on Wednesday August 13, 4PM ET – celebrating our debut, on August 14, 2013, of “Lyme Light Radio with Katina” on a breezy summer day. My first guest was the talented nurse practitioner and author of “Nature’s Dirty Needle”, Mara Williams. Friends and colleagues in the Lyme crisis, our inaugural show was an instant winner. With phone calls, emails, tweets and Facebook posts quickly flying- Mara and I and the much of the Lyme community were all delighted.

The weeks ahead unfurled. I kept reaching out to prominent doctors, advocates, foundations, scientists and patients in the Lyme community to be guests and BINGO! Everyone but one person has said YES to coming on air LIVE on Wednesday with me on “Lyme Light Radio” to help educate, inspire, and bring help to our world-wide audience.

If you go back and look (and listen) to our archived podcasts at http://lymelightradio.com, you will be stunned at the caliber of absolutely top rate guests we have, and when you listen to our programs, the level of quality information shared so generously by these time burdened, passionate, cutting edge individuals is astounding!! They are teaching us WHY we have been getting so sick from tick borne illnesses and explaining HOW to get well -this is breathtaking, profound information- coming to you weekly,for free!!

In this amazing year I have had the great good fortune to interview guests from all over the world involved with Lyme disease- Lyme Poland, Lyme UK, Jenny O’Dea in Ireland, Lyme Norway, Canadian expert Dr Murakami and many prominent physicians and researchers such as Dr John Aucott, Dr Klinghardt, Dr Alan MacDonald, Pamela Weintraub, Dr Kerry Clarke, and more!— the line up has been sensational!! “Lyme Light Radio” has had an incredible first year! We must celebrate!

To be your host is a true honor. Every week I am given the opportunity to converse on a topic that is essentially critical to our future and something I care about deeply. The Lyme disease epidemic has raged too long, too many lives have been damaged, and too much lack of understanding has propagated an international public health crisis we can barely catch up to now. Time is NOT on our side, but the airwaves are! This dialogue we have started on “Lyme Light Radio” is pivotal and potentially transformative on so many levels. Please help me thank all the powers that be; our sponsors, my network, and my production team for helping us air “Lyme Light Radio with Katina.” Without this support we would not be here at all.

Dr. Pat Baccili, Transformation Talk Radio network owner and award winning host of the #1 show in Independent Talk Radio show, “The Dr. Pat Show,” is my guiding star. http://www.thedrpatshow.com/drp_drpat_baccili.php
Thank you Dr. Pat for giving me this chance, supporting my dream and partnering with me on so many special events – The Martha’s Vineyard Gala, The TBDA Masquerade Ball Live From NYC, and John Donnally’s cycle across America, ‘Bite Back for a Cure’ were beyond phenomenal.

To Linda Firing, Jesica Henderson, Kim Hunt, thank you for coaching me and my office assistants in radio production and so much ‘hand holding’ as newbies.

My crew at WBLQ is the BEST! Station owner Chris DiPaulo, Brian Sullivan, and Lorren Kleinkauf, each week you make that magic elixir run so smoothly – by finessing Skype contacts to my guests overseas, to John Donnally on a cellphone in the prairies, or a dropped caller in Montana, and just plain ol’ studio technical mystery that you handle with such ease. You back me up and produce our now ‘go to’ broadcasts faithfully. I understand people stop you in the street and rave about our program! How great it that? Runaway hit right away – on a key topic! Cheers mates- you are so fun, too!

To our sponsors who helped fund the production of this show – Advanced Cell Training, BioResource Inc., Deer DeFence, TBDAlliance, I am indebted. Without you, we could not bring all this help and knowledge to others. Your belief in me and this program’s mission means so much to me!

It will be time to start our fundraising and sponsorship drive soon for this next season. Listeners and friends, I hope you can help even in small amounts when we start our campaign– the show must go on!! WE have a great program going now, it is too key to loose this edge and validation of a silent epidemic. I will let you know as we start the fundraising efforts.

Special thanks no my personal assistants, Charlotte Miller, Chloe Rapp, Catherine Bailey, Arianna Meehan – OMG – you keep me organized and help me coordinate our brilliant guests and sponsors. The details are endless and the technology beyond my capacity. Bless your professionalism, camaraderie, enthusiasm and often weird hours that we pull.

To our listeners I say bless you! My heart is in “Lyme Light Radio” for the all too many millions maimed by lyme disease and co-infections. I cannot sit on the sidelines and let the suffering continue. This illness needs to be thoroughly wiped out, preventable, diagnosed properly and no longer ravaging multi-generations.

My intention is that you learn something new every week on “Lyme Light Radio,” gain a glimmer of hope, feel less alone. We broadcast out of Westerly, RI on WBLQ 1230 AM with a listening range of 1,500,000 residents, streaming live on the web via the Dr. Pat Show syndicate and Transformation Talk Radio, we span the globe to multi-millions! Our shows are archived forever http://lymelightradio.com, and on the Transformation Talk Radio mobile app https://play.google.com/store/apps/details?id=com.ttr.transformationtalkradio.

I get emails from all over! Germany, Belgium, France, Poland, Iraq, Australia, Canada, Uruguay, Iowa, Arkansas, Florida, you name it! Thank you listeners for tuning in with us, for following, for sharing tweets and FB posts, helping others find help via this show.

In gratitude to you all, my anniversary show this Wednesday August 13 is a book giveaway. All listeners can email us at lymelightradio@gmail.com with your name and address and I will send you an autographed copy of my award winning memoir “Out of the Woods: Healing Lyme Disease – Body, Mind and Spirit.”

Also, this is a different format this week – I am the guest!! My wonderful assistant Catherine Bailey will interview me!! Tune in 1 PM pt/4 PM ET and find out why I wrote my memoir, how “Lyme Light Radio” got started and what we will be doing in the year ahead! The tables are turned. I have to answer the questions!!

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Catherine Bailey is an aspiring broadcaster who lives in Manchester NH. She graduated from Southern NH University with a degree in Communications, and has been accepted to the University of Iceland in Rekyjavik for the fall of 2015. Catherine is active in local political causes, community theater, the Toastmasters public speaking club, and the performance poetry scene. She dreams of working with her voice, on the radio, reading audiobooks, and performing as a voiceover artist.


In parting I would like to say I am truly grateful for my life journey. Even with my vivid imagination, I never dreamed as a humble homeopath in a private practice, in a tiny New England village, I would be asked to walk onto the trenches of a world wide epidemic and tend to the decimated thousands of weary souls. Each of you whom I meet out ‘on the road’ when I speak touch me. Your stories are profound, your hearts are pleading and your souls are mighty. I feel your pain and I won’t stop working for us all until we affect a true healing.

It is my privilege to host “Lyme Light Radio.” We will change the future. I wear this mantle now with pride, for together we will make a difference. Thank you one and all. Join me each week and let us rejoice in the good “Lyme Light Radio” induces. Happy anniversary!! May there be many more to come!!

Follow us on Twitter @LymeLightRadio and @KatinaMakris and on Facebook /katina.makris.9 /OutOfTheWoodsBook and /LymeLightRadio. And on LinkedIn http://www.linkedin.com/pub/dir/Katina/Makris.

Everyone raise a toast, even if it is your healthy green drink, to this day of celebration! We have so much to look forward to– one new addition will be a monthly show where citizens of a specific state will call in live with their stories, politics and advances. I want to showcase what is happening or not happening in assorted endemic areas that are often overlooked. I also look forward to bringing on more scientists whom are working to crack the ‘Lyme code’ of systemic collapse for so many. WE will learn alot. Stay tuned each week and tell your friends we are here broadcasting faithfully!

Kindly,
Katina I. Makris, CCH, CIH

PS– thanks facebook friends for the photo decision making process. That was fun to work together.

PPS– If you missed this special episode, you can find it on iTunes or listen at http://thedrpatshow.com/shows/mak-140813-makris.mp3

Why The IDSA does not Recognize Chronic Lyme Disease, with Dr Eric Gordon

Dr. Eric Gordon

 Lyme Light Radio with Katina interviews one of America’s premier Integrative Health Care Physicians and Lyme Disease specialists, Dr Eric Gordon, founder of Gordon Medical Associates in Sonoma, Ca. Join us this Wednesday, March 12, 1pm pt/4p et on TransformationTalkRadio.com, TheDrPatShow.com, LymeLightRadio.come or at 1230AM WBLQ on the dial in Southern New England.

I am honored to share the hour discussing Dr Gordon’s expertise on the mayhem surrounding the exploding Lyme disease epidemic and just why

What Dr. Eric Gordon emphasizes is listening to his patients. “I believe my patients. Their description of what is going on in their body is the most accurate way we have to assess what is going on with them. I interpret the information they present, and blend it with laboratory results and imaging and other tests to determine a protocol that is customized to their condition.”

Patients with poorly defined chronic illnesses react differently to all types of environmental stressors and medical interventions. While one patient may respond well to a particular protocol, other patients may not respond at all, or even have a negative reaction.

Dr. Gordon knows there is an interwoven complexity to these illnesses. There is a layering of the body’s adaptations to environmental toxins and infections from pathogens that is unique to every person, depending on their genetic susceptibility, organ vulnerability, toxic exposures, medical history and life circumstances. The body’s various biological systems – immune, endocrine, neurological, gastrointestinal and so on – influence each other and are influenced by each other, both in the development and progression of illness, and also its resolution.
When illness has been present for a long time, a patient’s body is almost invariably dominated by the sympathetic nervous system; it is in a state of hyper-vigilance, a constant ‘fight-or-flight’ mode. Dr. Gordon knows to begin with gentle interventions to help the body find a place of rest and safety. These initial steps allow the parasympathetic nervous system to function appropriately, to let the body find its way, and start healing itself.

This necessitates an eclectic approach. Dr. Gordon says, “As the components of a person’s chronic illness reveal themselves, so will treatment direction. Some patients may immediately benefit from intravenous therapies. Others may respond initially to energetic modalities, such as Frequency Specific Microcurrent or Photon Stimulation. Some patients may require antibiotics while, for others, herbal or homeopathic remedies may be more suitable. Everyone has different supplementation requirements, and needs to follow different detoxification strategies.”

In addition to seeing patients in his practice, Dr. Gordon has organized and served as medical advisor and moderator for a series of medical symposia in Northern California. From 2007-2009, these intensive five-day meetings brought together extraordinary faculties consisting of approximately 30 leading international academic medical researchers and cutting-edge clinicians, respectively focusing on CFS, Lyme, autoimmune diseases and autism.
For Dr. Gordon, however, knowledge and understanding does not come primarily from research, but from interaction and direct experience with his patients. He is first and foremost a private practice physician. His deep respect for the biochemical individuality of his patients is at the heart of his approach.

Dr. Eric Gordon

Carolina On My Mind

Four whirlwind days in one of my favorite states- North Carolina! I’m partial to this land of windswept beaches, blue tinged mountains, and stretching midlands. Most likely this ties in to my years living here, while at Duke University. But, the soft springtime air and gracious hospitality of North Carolineans cannot be dismissed. There is an easy comfort to this pretty region, and some mighty fine food to be savored!

Durham has blossomed. From the old smoky tobacco town I knew in the 1970’s, with its narrow downtown streets scented by a sweet aroma in the gentle mornings, the former, decaying infrastructure has been revamped to a vital commercial district. The college students must love it- great restaurants and clubs, darling shops and tree-lined, freshened streets everywhere.

The relic wooden slat Durham Bulls AA baseball stadium I used to watch minor league games at with my college boyfriend was funky; squeaking bench seats and old-timers spitting chew liberally. It was a colorful slice of small town pro-ball. We liked it. Now, Durham Bulls boast a gleaming, snazzy stadium, rivaling a major-league park in its glamour and comfort. What a skyward leap!

Duke, as you can imagine, has grown astronomically. Tons of new science buildings, hospital expansion, air-conditioned dormitories sprouted amid the old woodlands. I understand the need for progress as a cutting-edge campus and my heart shrank a tad, wistful for the former tie-dyed, frisbee days on the quad. The iPod force of sleek students trailing to classes is less congenial. My alma mater, however, still glowed benevolently in the fine Carolina springtime. Cherry blooms and daffodils dancing were bits of color to my New Englander’s snow-trained eye. What a delicious taste of beauty!

Though treasuring some reunion time with old friends, I came to North Carolina to work, and what long hours I expended! This state is severely infested with ticks, the primary Lyme disease carrier. Over a dozen people told me they pull at least 20 ticks off their bodies each summer, and a dozen a day from pets! Mild winters, lots of low-growing vegetation, and being in an obvious migratory bird fly-way brews a prime Lyme disease habitat. The very sorry situation is the North Carolina doctors and residents are extremely uneducated about this surging epidemic illness.

The North Carolina Lyme Disease Foundation brought me in to help amend the denial, offer solace to the stricken and promote Lyme dialogue. Special thanks go to John Dorney, President, Jan House, Treasurer, and the busy efforts of Frances Kuhlbars and Emily Amber for your excellent support and PR assistance. Dr. Jason Chow of Chapel Hill, and Mary Marchbanks at Carolina Hyperbarics, your generous alliance made dual locations possible for my venues.

As I am all too familiar with, now 40 “Lyme Talks” later, the stricken and caregivers limped in. The weakness, palsies, ashen color are palpable touchstones to my former Lyme-addled life, too. Yet, I gave two inspired, informative presentations, one in Raleigh, the other in Chapel Hill, while fielding massive Q&A’s. So much help is needed, with less than a handful of Lyme-literate doctors in the state. But the work has begun! As the first person to come in from out-of-state to offer support, I am honored to be a lamplight of hope and urge you on to keep Lyme disease awareness work in motion. Inroads can be made.

Dr. Jason Chow is asking all NC residents with Lyme disease to write up a clear, one page story of their Lyme illness and email it to lymeletters@ gmail. com, by April 15th. He aims to present 1,000 Lyme cases to the state Health Department, establishing that Lyme disease does exist throughout North Carolina and it needs recognition! Please participate if you are a resident. This very same measure needs to be modeled in all US states, helping us define the epidemic.

My speaking engagements were long and rather energetically demanding on me, but very worth it, as I know how crucial hope and resource is for those struggling. Having walked the “Lyme Road” for ten arduous years, I intimately fathom the importance a hand-hold of comfort provides.

Thank you one and all for coming out to meet me. I hope “Out of the Woods” finds a special place in your heart. And, lovely North Carolina, you still charm a Yankee girl like me with your blissful springtime grace!

 

-Katina

“The Florence Nightingale of Lyme”- California was Great!

A whirlwind week in California, bringing Lyme disease resources and tools to many, was a wonderful experience! How fortunate I was to stay with cherished old friends, meet such special people and soak in the glorious spring sunshine. These “Lyme Mission” trips I have been making since “Out of the Woods” was published in November 2011 are nothing short of miracles. So much good comes from it all!

I am ecstatic to have regained my health, to be strong enough again to travel nationally and speak on behalf of Lyme. The universe aligns me time and again with fortuitous connections, opportunities and support while on the road. And to be instilling hope and camaraderie amongst the townships I visit feels so important. Most vivid to me is that my personal Lyme experience and professional knowledge are making a difference.

My heart just beams each time one of you tells me how helpful “Out of the Woods” has been. I know in that moment I did a good job with the book. And, then, the heartfelt handshakes, hugs and tears shared at the end of my presentation strike so deeply in my core. I’ve walked the “Lyme Road” with all of you and when I feel your suffering, confusion and fragility at these talks I feel inspired to keep at it all, even though it is hugely time-consuming and not financially profitable. The healer in me cannot let others flail.

So, with deep meditations, resting, swimming (when possible), and the laughter of friendship buoying me while traveling, somehow, I believe that if I keep at this- visiting stricken regions, holding a lamplight of inspiration, making this illness more publicly talked about, I will affect a change. A change for the better- more attention, earlier diagnostics, more thorough treatments, maybe even a vaccine! Am I crazy to be working so hard? Is it possible I can keep it up with only $5 admission at the door helping cover my travel expenses? I don’t know. Yet my instinct says I’m doing the right thing.

One of my attendees said “Katina, you are the Florence Nightingale of Lyme, comforting others and pushing for change. Thank you.” That was a sterling remark to hear uttered. As an eight year old girl, my favorite books were Florence Nightingale’s biography and “Little House on the Prairie.” Here I am, ministering to the sick and seriously wounded. Life is a marvelous, spiraling pirouette!

Thank you Maritza Padgett, Bonni Rooney and all my fabulous new friends at San Diego Lyme Support. We had a daffy series of monkey wrenches and we overcame. We were bounced out of the library by a big bash with the mayor, superseding us, a mere 24 hours prior to my appearance. Frantic phone calls, emails, makeshift signage, and we relocated to nearby Hoyt Park, my first outdoor venue. Maritza’s pop-up tents, folding chairs, and a stalwart Lyme tribe gathered. Then! The automatic sprinklers erupted, drenching us and necessitating makeshift dams constructed from random rocks and tarps! Lymies are survivors- we enjoyed two wondrous hours together! Amen.

More thanks to Shannon Connoyer, Sandi Bohle, and my new friends at Ventura Lyme Support. This event went along more smoothly, yet we lost a few folks due to our location somehow not showing up on GPS!

I appreciate the stricken, the caregivers, the healthcare providers, for joining us, all your great questions, and of course our famous synergy. My visit with each host was a delight.

Back home now, I’m prepping for North Carolina in April and getting the sponsorship package together for my upcoming radio show; “In the Lyme-Light with Katina Makris.” This is a huge step for Lyme- our own radio talk show!

So many more events to come in 2013, and my efforts to get “Out of the Woods” in audio format continue, as well as foreign translations. We’re off to a superb start!

Thank you California! You treated me well and I hope I brought you some solace and inspiration. The human being is an amazing creature. We are resilient, endowed with inner riches and capable of transformation. I honor the power within us all.

 

Carolina Here I Come! Lyme Disease Author Brings Hope and Help

The North Carolina Lyme Disease Foundation has invited me to come to their Lyme-ravaged state, bringing pertinent guidance on this swiftly spreading infectious illness epidemic. This is a very exciting opportunity for all!

Unfortunately Lyme and its co-infections have slipped under the radar in all of the South. Most doctors are completely unaware that Lyme is active and spreading, misdiagnosing thousands of cases as the flu, lupus, MS, CFS, ALS, fibromyalgia, arthritis, peri-menopause, depression, anxiety, food allergies, and more. They are following outdated CDC and Infectious Disease Society information from the 1980s that labels Lyme Disease as a mere short-term, two week condition.

Clinical evidence has established that this corkscrew bacteria migrates from the bloodstream, to joints and soft tissue, and eventually to the brain and nervous system, creating assorted chronic symptoms and triggering auto-immune style illnesses.

Currently, there are a mere handful of healthcare practitioners recognizing and treating chronic Lyme in North Carolina. Much education needs to be done.

My two talks, in Raleigh and Chapel Hill in April, are open to the public and sponsored by the North Carolina Lyme Foundation. I will present critical information and guidance on signs and symptoms, diagnostic labs, prevention, and treatment. April 7 in Raleigh, April 8 in Chapel Hill. See details below.

Please tell all of your contacts and friends to come and spread the word! This is the first time anyone has come to North Carolina bringing any sort of help or hope. I am honored to be the first “missionary” in, and of course aim to shift the tides of misunderstanding and Lyme denial in the South. Let us envision this trip as the tipping point!

Please follow the link below for dates, times and locations of these events.

NC ad Natural Awakenings

A special thanks to Frances Kuhlbars, Emily Amber, John Dorney, Jan House and Jason Chow for helping these events happen.

Katina

News From the International Lyme and Associated Disease Conference

The ILADS (International Lyme and Associated Disease) was held at the Westin Waterfront Hotel in ever stately Boston, MA on the weekend of November 2-4.  In the wake of hurricane Sandy’s devastating torrent to the tri-state area, many did not attend as planned, and yet the show did go on!  And, I must say what a stunning show it was.

Arriving to a crowd of 500+, on a windy Friday afternoon as the moody November skies banked my car drive down to Boston, I immediately was caught up in the camaraderie and passion of so many who truly care about the epidemic of our time- Lyme disease.

The common area was thronging with people, colorful display booths by Igenex labs, Advanced Speciality labs, Nutramedix, support groups, more and more flanking the sides.  I joined Mara Williams, “Nature’s Dirty Needle” and Nicola McFadzen, “The Lyme Diet” with my memoir and guide “Out of the Woods,” at the author’s table.  Within seconds I was fielding questions and sharing stories and treatments with others.  The energy was high.

The grand ballroom essentially served as “Lyme Central.”  Each day we were captivated by the intelligent, probing and educational words of 23 speakers in total.  My head was swirling with knowledge by day’s end, as it was like being on an IV of cutting edge Lyme information. Imagine being in a post-grad level medicine or science class 10 hours per day for 2 1/2 days straight!! Your mind is glowing with intake while sorting and categorizing so much in it’s dual hemispheres.

Simultaneously three smaller “break-out” rooms carried lectures on associated Lyme related topics; either Integrative medicine focus, research work, legal issues, pediatrics, toxicity and more. (another 19 speakers).  I wanted to be everywhere at once-in the common area gabbing, the ballroom and break out rooms learning or at my author table sharing!  It was impossible to not be ignited by the dynamic environment and stimulating minds.

The Westin was a lovely setting, a broad sunny building, tall sweeping windows and conveniently located for evening restaurant outings ensemble.  It was a marvel to me, a formerly bedridden Lyme casualty, to be supping tableside with Lyme illuminatta, Dr.  Richard Horowitz, Lymedisease.org’s Dorothy LeLand, support group leader-James Gilbert and “The Hormone Book” author Phulie Cohan.  The cocktail reception, hosted by Igenex labs, was a non-stop ferris wheel of spontaneous, flame-flickers of introduction.  In a matter of minutes I was chatting with Joseph Jemsek, Neil Nathan, Eric Gordon, Jodi Darshore, Joseph Burrascanno, Steve Clark, Lyme patients and advocates.  The names and faces string on like a sparkle of Christmas twinkle lights.  Honestly, I felt bewitched by the magic of union and compassionate dedication we shared.

Saturday was another day of miracles.  Sam Shor’s chronic fatigue talk, Dr. Raxlen’s relapsing borreliosis presentation and Wayne Anderson’s genius “Cog wheel” explanation of whole bodily system breakdown due to Lyme infection were just plain ground breaking.  When you mix in Sam Donta’s understanding antibiotics regarding Lyme treatment, Clongen labs Ahmed Kilani’s latest detection tests and Neil Nathan’s clear communication about neurotoxins in illness, well you feel like you have been rocketed to the moon.  It is all critical and stunning work they are doing.  it makes me feel hopeful.

Though Lyme disease has been essentially ignored by 95% of the medical world, scoffed off with outdated Infectious Disease Society information from the early 1980’s as a short term infectious illness, these medical professionals and the other 500 of us at the conference are dialed into something totally different.  We believe from either having experienced it first hand as a victim or facing it straight on in clinical practice or labs, Lyme disease and associated micro-organism co-infections DO exist in a chronic form.

The palsies, the exhaustion, the grueling bone pains and migraines, the brain fog, fibromyalgia, the panic, depression, OCD, neuropathy, strokes and dementia are not imagined or a fall-out from something else.  Borrelia burgdorferi, a nasty, shape-shifting cyclical living bacteria can reek havoc on multiple systems on the body, and mess with your mind, too.  It loves our joints and soft tissue, gladly burrowing in for a lifetime and generations as a mother can pass it to her fetus.  I met with a woman from India, who identifies, she is a fourth generation Lyme infected person, aware of how it has been threaded through her ancestors in vitro!  The European and Asian doctors there talked of its threats in their country.

Ultimately, borrelia and company (bartonella, babesia, erlichia, etc.) gorge on our amino acids, glucose, vitamin D, minerals and more essentials, spiraling inwards to its’ holy grail-our spinal fluid and brain.  This is where pure havoc and devastation result; with ALS, MS, Parkinson, Alzheimer’s and Tourette’s syndrome next surfacing.

Sunday morning’s final presentations at the conference were all brilliant.  Dr.  Alan MacDonald, a long time Lyme researching physician received a standing ovation, at his heartfelt discourse’s end, as he vowed to prove in his lifetime that Alzheimer’s is caused by borrelia burgdorferi! He has evidenced based research he has been working on for 20 years.

Ginger Savely gave us current guidelines of how to use the CD57 marker test.  The prominent take-home was that it can be skewed by other immunological stimulation agents such as molds and viruses (EBV, CMV), thus making it a tricky test to rely upon steadily as a Lyme improvement barometer, though we wish it could be.

The whole conference flowed beautifully.  The environment and attendees were wonderful, the volunteers helpful and vendors so informative.  Hats off to the remarkable, organized and clever,  Executive director, Barbara Buchman for making this ILADS event so top drawer.

It was a phenomenal moment for me, when speaking to a new friend, that I became aware of the fact that established veteran medical doctors were standing at the homeopathic and herbal medicine booths seriously interested in how these protocols can help heal Lyme disease cases.  Here was my vision of the future before my very eyes and my message I lecture with shining forth!

Lyme disease is the epidemic of our era that asks us to unite the two hands of health care:  the diagnostics and pharmaceutical weaponry of allopathic medicine, with the restorative therapeutics of natural medicine.  Two hands working together are better than one (Katina Makris, 2012).”

By the time I packed up the last few copies of “Out of the Woods,” I was soaring to the sun.  Many people purchased my book, by the way, and famous health care professionals had sought me out, congratulating me in both my healthy recovery and a job truly well done in telling my story.  I feel so inspired by the enormous talent I swam amid for three days and so grateful for the tremendous opportunity I am living.  I made valuable new friends, shared such depth and meaning with others and came home with true hope the the “lyme code” will be cracked in my lifetime, heralding a new, more integrative approach to health care in the USA.  It’s a far cry from 30 years ago.

Meanwhile, it’s onward and upwards for all of us hard workers.  I am invited to speak at the Australian Lyme conference in 2013!  I’ve forged alliances to co-present at a chiropractic training.  Support group leaders from Florida, Connecticut and Texas want me to come speak to their members.  Many of us left with a fistful of business cards, new connections bearing fruits of our intentions.  These are amazing times.

Good news is that you can go to ILADS.com and register to watch most of the lectures presented at this 2012 conference “streaming” on your computer, December 1, 2012.  Do it! You will be enthralled.

Thank you Barbara Buchman, all the presenters, the helpers and vendors, and the concerned people in attendance at ILADS Boston.  This was a spectacular weekend.  A moment in my life I will forever remember.  Up form the ashes I flew, like a phoenix rising to a higher dimension.  Crippled, racked in pain and lost in tepid confusion a mere few years ago, I am awed by the resiliency of my body and spirit to heal, and indebted always to the forces that have enabled me to soar above and beyond the stifling grip of the stealthy micro-organism of Lyme disease.

As always, I offer you blessings for health and happiness,

Katina

Lyme Disease – A Campaign Issue That Lingers

The New York Times contacted me in September to write an Op-Ed piece for them about the chronic Lyme disease situation in the USA, which has been ignored for so long, and actually decried by medical groups and most recently by the media and renowned newspapers, such as Slate and The Washington Post, who brushed off this life altering infection as a “quack illness!”

Sadly, The New York Times ended up not running my piece, due to the accelerated presidential campaign news, becoming so central.  However, I still have my powerful Op-Ed, and share it here now.  I would love to see it make its way into a major publication or of course more blog sites.  Please pass it along to all people and places you feel it will resonate with.

Thank you for supporting my work and efforts to illuminate the tragedies of this very REAL epidemic.

Lyme Disease – A Campaign Issue That Lingers
Katina I.Makris, CCH, CIH

While campaigning in Virginia Romney/Ryan were lambasted by reputable publications for their efforts promising to thwart Lyme disease, a growing epidemic, decried as a “ quack illness” by the uninformed.  Yet, people are concerned for contagion in their own neighborhoods.

Since it was first recognized in 1975, this tick-borne illness has been highly politicized and contentious; wide-ranging symptoms making it difficult to  diagnose and treat, earning Lyme ‘The Great Imitator’ moniker. The CDC and the Infectious Disease Society of America recognize acute Lyme- the achey, flu-like symptoms occurring right after a tick bite, but deny Lyme manifests as a chronic illness.

I’ve seen the devastating effects of chronic Lyme countless times, and have lived through it myself.  On a June night in Massachusetts, a standing room only crowd; newspaper reporters, doctors, board of health members converge, stricken citizens voice their messages:

“ My health has deteriorated for 15 years, with apparent fibromyalgia, Bells palsy and dementia. Only last year did lab work prove I have had lyme all along,” an infuriated woman conveys. A single mom’s 9 year old son has been paralyzed. She says, “Famous hospitals had no answers. Fortunately, a savvy physician recognized the neurological form of Lyme and 9 months later on IV antibiotics, he is able to ride a bike again.”These are real people, with a real disease, who need real help. Lyme is not the ‘’illness du jour’.

The Lyme-causing bacteria, Borrelia burgdorferi, is cork-screw spirochete, akin to syphilis. If not treated promptly, the spirochete disseminates throughout the body, burrowing into soft tissues, joints, the nervous system and organs, triggering auto-immune responses and inflammation, resulting in diverse symptoms from vertigo to palsy to mental illness. Authorities agree that acute Lyme is arrested with simple, ample antibiotics, while long term forms brew a sea of controversy, as a documented consistent cure is nonexistent.

With commercial Lyme lab tests exhibiting a 65% false negative error rate, finding Lyme knowledgable doctors, who know to use one of the USA’s diagnostic specialty labs is difficult. Certain states have stripped physician’s licenses for long term antibiotic use, despite clinical evidence of success.  On the other side of the fence, thousands of patients do not adequately regain their health, even after years of expensive multi-pharmaceutical combinations.  These tragedies only underscore the necessity of more timely research and treatments options.

Most doctors are unaware Lyme exists outside of New England. But ticks, the prime vector for Lyme, are found everywhere in the U.S, having spread as a result of global warming and migratory bird patterns.

A woman from Tennessee told me she removed 14 ticks from her husband, 5 with bulls-eye rashes, after clearing brush. Their physician said “This isn’t Lyme disease, we don’t have that illness here. It is only found on Cape Cod.” Her husband went on to suffer crippling migraines, joint pain, and depression and can no longer work. But, as the world warms and different infected tick species move comfortably into new habitats, we should be especially alert.
In 2011, 35,198 new Lyme cases were reported by the CDC, representing a 40% increase from 2006.  Additionally, the CDC acknowledges that the true number of Lyme cases is probably ten times higher, translating to an estimated 3,000,000 Americans shuffling through our health care system in various states of misdiagnosed illness over the past ten years alone. (Klempner et al. 2001). Mismanaged Lyme disease is over burdening the medical community, the insurance industry and wrecking lives.

Renowned Lyme specialist, Alan MacDonald’s 1980s studies proved that 70% of Alzheimer patients tested positive for the Lyme-causing spirochete, and that Lyme could cross the placental barrier, affecting the fetus.  Yet, a 100% accurate borrelia culture test and more private research into this area could not get governmental financial backing. The position of the IDSA remained unchanged: Lyme disease was a short term infectious illness and any patient complaints made after the brief antibiotic treatment were non related or a ‘’post syndrome’. (Burrascano 2012)

Western society experiences a massive life-altering epidemic—HIV, polio, tuberculosis—approximately every 30 years. HIV exploded into our lives in the 1980‘s, when Lyme was still an unsuspected acute illness. Covertly, Lyme pirated its way into our backyards, as who ever saw the pin sized deer tick nymphs creeping across their back or scalp?  Are we sitting in the crosshairs of the potential epidemic of the 21st century having ignored its ugly saber strikes? Tick borne organisms could be the lock and key ingredient to many of mankind’s chronic ills.
Having lived in heavily infested Massachusetts, Romney maybe more Lyme aware.  Partisan rhetoric and media slant shouldn’t obfuscate basic medical funding for a disease that does not discriminate against any American; age, economic status or political party included.  ILAD’S president Dr. Leo Shea sums up the situation, “ We witnessed HIV be disregarded by medical authorities as thousands died.  We cannot afford to let Lyme destroy another generation.”

Katina I. Makris, CCH, CIH is the author of “” Out of the Woods, Healing Lyme Disease, Body, Mind & Spirit”, Elite Books, 2011.

Katina.makris@comcast.net

Katinamakris.com

Vote for Katina as 50 Top Authors, 2012

Dear Friends,

Would you be kind enough to give me your vote in this author’s contest below?

Vote Here!

There is a brief essay of mine to read if you like, don’t feel obligated to, especially if you already read “Out of the Woods!”

Thanks for your vote and let’s hope I make top 50!

Cheers!

Katina