Lyme Light Radio hosts two fabulous interviews this week. Join us Wednesday November 13, 4pm ET/1pm PT on TheDrPatShow.com and LymeLightRadio.com at the top of the hour.
TBDA cyclist John Donnally on the “Bite Back For a Cure Campaign” updates us on his amazing trek across America. Launched 9/29 from San Francisco, this heroic Lyme disease survivor and advocate has been busy bringing advocacy and awareness nationwide. Now in Ohio, we share John’s journey and gathering grassroots coalition. TBDAlliance.org
ILADS (International Lyme and Associated Disease Society) is the premier educational group in the world, training health care practitioners about tick borne illness. Dr. Daniel Cameron, ILADS President, joins us at 4:30/1:30 for an intimate view inside this instrumental organization and the life altering work they do. It is my true privilege to interview this remarkable physician and devoted Lyme disease educator. ILADS.org
Do not miss this very important show. Please share this with all your friends. We will be archived in podcast at TheDrPatShow.com and also on itunes.
Thank you listeners! “Lyme Light Radio” celebrates it’s 3 month birthday with this show! Wow!
Like last week, I will give an autographed copy of “Out of the Woods: Healing Lyme Disease – Body, Mind & Spirit” to our 5th caller. 800-930-2819 Be that lucky recipient! Join us!
Four whirlwind days in one of my favorite states- North Carolina! I’m partial to this land of windswept beaches, blue tinged mountains, and stretching midlands. Most likely this ties in to my years living here, while at Duke University. But, the soft springtime air and gracious hospitality of North Carolineans cannot be dismissed. There is an easy comfort to this pretty region, and some mighty fine food to be savored!
Durham has blossomed. From the old smoky tobacco town I knew in the 1970’s, with its narrow downtown streets scented by a sweet aroma in the gentle mornings, the former, decaying infrastructure has been revamped to a vital commercial district. The college students must love it- great restaurants and clubs, darling shops and tree-lined, freshened streets everywhere.
The relic wooden slat Durham Bulls AA baseball stadium I used to watch minor league games at with my college boyfriend was funky; squeaking bench seats and old-timers spitting chew liberally. It was a colorful slice of small town pro-ball. We liked it. Now, Durham Bulls boast a gleaming, snazzy stadium, rivaling a major-league park in its glamour and comfort. What a skyward leap!
Duke, as you can imagine, has grown astronomically. Tons of new science buildings, hospital expansion, air-conditioned dormitories sprouted amid the old woodlands. I understand the need for progress as a cutting-edge campus and my heart shrank a tad, wistful for the former tie-dyed, frisbee days on the quad. The iPod force of sleek students trailing to classes is less congenial. My alma mater, however, still glowed benevolently in the fine Carolina springtime. Cherry blooms and daffodils dancing were bits of color to my New Englander’s snow-trained eye. What a delicious taste of beauty!
Though treasuring some reunion time with old friends, I came to North Carolina to work, and what long hours I expended! This state is severely infested with ticks, the primary Lyme disease carrier. Over a dozen people told me they pull at least 20 ticks off their bodies each summer, and a dozen a day from pets! Mild winters, lots of low-growing vegetation, and being in an obvious migratory bird fly-way brews a prime Lyme disease habitat. The very sorry situation is the North Carolina doctors and residents are extremely uneducated about this surging epidemic illness.
The North Carolina Lyme Disease Foundation brought me in to help amend the denial, offer solace to the stricken and promote Lyme dialogue. Special thanks go to John Dorney, President, Jan House, Treasurer, and the busy efforts of Frances Kuhlbars and Emily Amber for your excellent support and PR assistance. Dr. Jason Chow of Chapel Hill, and Mary Marchbanks at Carolina Hyperbarics, your generous alliance made dual locations possible for my venues.
As I am all too familiar with, now 40 “Lyme Talks” later, the stricken and caregivers limped in. The weakness, palsies, ashen color are palpable touchstones to my former Lyme-addled life, too. Yet, I gave two inspired, informative presentations, one in Raleigh, the other in Chapel Hill, while fielding massive Q&A’s. So much help is needed, with less than a handful of Lyme-literate doctors in the state. But the work has begun! As the first person to come in from out-of-state to offer support, I am honored to be a lamplight of hope and urge you on to keep Lyme disease awareness work in motion. Inroads can be made.
Dr. Jason Chow is asking all NC residents with Lyme disease to write up a clear, one page story of their Lyme illness and email it to lymeletters@ gmail. com, by April 15th. He aims to present 1,000 Lyme cases to the state Health Department, establishing that Lyme disease does exist throughout North Carolina and it needs recognition! Please participate if you are a resident. This very same measure needs to be modeled in all US states, helping us define the epidemic.
My speaking engagements were long and rather energetically demanding on me, but very worth it, as I know how crucial hope and resource is for those struggling. Having walked the “Lyme Road” for ten arduous years, I intimately fathom the importance a hand-hold of comfort provides.
Thank you one and all for coming out to meet me. I hope “Out of the Woods” finds a special place in your heart. And, lovely North Carolina, you still charm a Yankee girl like me with your blissful springtime grace!
The North Carolina Lyme Disease Foundation has invited me to come to their Lyme-ravaged state, bringing pertinent guidance on this swiftly spreading infectious illness epidemic. This is a very exciting opportunity for all!
Unfortunately Lyme and its co-infections have slipped under the radar in all of the South. Most doctors are completely unaware that Lyme is active and spreading, misdiagnosing thousands of cases as the flu, lupus, MS, CFS, ALS, fibromyalgia, arthritis, peri-menopause, depression, anxiety, food allergies, and more. They are following outdated CDC and Infectious Disease Society information from the 1980s that labels Lyme Disease as a mere short-term, two week condition.
Clinical evidence has established that this corkscrew bacteria migrates from the bloodstream, to joints and soft tissue, and eventually to the brain and nervous system, creating assorted chronic symptoms and triggering auto-immune style illnesses.
Currently, there are a mere handful of healthcare practitioners recognizing and treating chronic Lyme in North Carolina. Much education needs to be done.
My two talks, in Raleigh and Chapel Hill in April, are open to the public and sponsored by the North Carolina Lyme Foundation. I will present critical information and guidance on signs and symptoms, diagnostic labs, prevention, and treatment. April 7 in Raleigh, April 8 in Chapel Hill. See details below.
Please tell all of your contacts and friends to come and spread the word! This is the first time anyone has come to North Carolina bringing any sort of help or hope. I am honored to be the first “missionary” in, and of course aim to shift the tides of misunderstanding and Lyme denial in the South. Let us envision this trip as the tipping point!
Please follow the link below for dates, times and locations of these events.
With the season of gift giving upon us I am happy to announce a HOLIDAY Sale for “Out of The Woods, Healing Lyme Disease, Body, Mind & Sprit”.
$12.95 with free shipping in USA, autographed by me! retail price is $18.00.
I was able to get a few cases from the publisher and can mail a book directly to you. Contact me at my email with your address Katina.Makris@comcast.net or you can pay directly at PayPal, my email there is firstname.lastname@example.org
This is a wonderful gift for a loved one in need of hope, healing and inspiration. “Out of The Woods” was awarded by USA Book News as a finalist for Best Book in Alternative Health. It is my recovery memoir from advanced chronic Lyme disease, as well as a guide on diagnostics, labs, treatment options, for the epidemic of our era. Filled with emotional support and a riveting plot, this book
is a universal voice for those walking the often lonely and confusing ‘Lyme Road’.
For those of you who are in the mood for a nice review of Lyme disease and a glimpse into my 10 year personal experience dealing with this quixotic, often decimating infectious illness, listen in below to the interview I did recently with Eric Chamelik, a welcome host and nutritional counselor.
We explore many of the Lyme essentials and expand into recovery tools. This is a great show to share with others in need or curious about the world wide issue of Lyme disease.
This is the foremost event of each year, uniting the best minds in Lyme disease research, lab work, doctoring, advocacy and philosophy.
To be strong enough to attend after years of Lyme collapse, with “Out of the Woods” proudly placed at the conference author table-I am elated! Send me stamina and I will fill you all in when back home.
I reflect in these misty mornings of Autumn’s rapid descent on how magical this season of change is. The colors, the tonal quality of the bird songs, and the romantic skies of gathering clouds, sweep into Northern New England with such a force. This year, with heavy rains, it all came upon us so quickly- chilly mornings and geese honking in flight while my zinnias lost their summer vibrance seemingly overnight!
But, then again I’ve been out working, lecturing in a whirlwind of passion, in these shimmering weeks of nature’s transition. I’ve been actually on the road, every single week since mid-March, sharing my recovery memoir and treatment guide, “Out of the Woods; Healing Lyme Disease, Body, Mind and Spirit.” Though I’ve lapped up every single place I’ve visited, like a sponge, soaking in the ambiance, the stories, the status of the Lyme epidemic, I’ve also skimmed through the seasons, in a way.
A nature spirit at heart, I treasure my garden, walks in the scented forests and swimming faithfully in our local pond. As a landscape painter, I spend days on end soaking in a locale, as I move its emotional fabric and composition to canvas. It feeds my spirit to be steeped in nature’s comfort and beauty.
I realize now, in a rare day of repose, that I’m a bit below my sensory quotient of absorption this year. My work as an author, speaker and Lyme disease advocate has taken me far and wide. How stunning this journey has been!
I have treasured the places and the amazing people I have visited. You are beautiful souls, often wounded by Lyme, mismanaged by the health care systems ignorance and yet rich in depth and sensitivity. It has been a tremendous honor to share my time with you.
For those of you whom have met me in person, you know I am passionate about helping others recover from Lyme disease. I was wretchedly ill, bedridden, broke and bereft myself six years ago. I’ve come so far, healed on so many levels and expanded in ways I could never have fathomed, formerly too ill to even feed myself.
I am appalled at how vast the Lyme epidemic is. From coast to coast, North and South, Lyme has crept into our lives, affecting multiple generations, many lives lost. It is impossible for me to ignore all of you who have been afflicted.
After losing everything I worked so carefully to create in my life- home and marriage, career and income, health and well-being, to Lyme, I know how devastating the ravages of this bacteria can be. I have walked the very same path as you.
I lecture and work so hard with my writing in behalf of Lyme disease awareness and healing because I want to affect a change for a better future. I want better diagnostics, an Integrative Health Care system, a Lyme vaccine and annual screenings for us all. I want our children to play freely outdoors, climb trees and build fairy houses, like I did when I was young, and not get Lyme disease.
If I keep speaking and teaching, sharing and writing, I believe each droplet of goodwill and effort I lend will affect the winds of change. A momentum will build as we coalesce. Group synergy can build a web of community and compassion. My intention to ignite the spiritual dimension of healing in each individual, can in turn stir great healing energy within and without. Over time and in process, the tides will shift!
I pray that in my lifetime I will witness an end to the Lyme disease epidemic. The abysmal weakness, the pains, the isolation, the confusion, the losses will be replaced with buoyant joy, vibrant energy, abundant creativity, a caring stewardship of Earth and a return to play and freedom amongst nature- my temple of solace.
As evening settles in, I light the candles, I sit still, listening to the winter winds whisking in on a distant tremolo. Soon the snows will arrive, blanketing us in whiteness and I will turn within; a time of meditations, writings and contemplation for me.
At this threshold of transition, I bow to each of the four directions. To the East, I offer my thanks for the vibrant, fresh energy that propelled me far and wide this year. To the South, I offer gratitude for feeding me so fully with love and acceptance, joy and sharing on each of my ventures. To the West, I acknowledge your mighty energy of fortitude and endurance to hold me, as I pushed myself physically like I was a youngster. To the North, I offer my pure respect for your guidance and perfect patience, bringing me home safely each trip and always gracing me with wisdom.
I have been moved deeply by all that I’ve experienced in this magical year. May my work and efforts bring the ministering of hope and inspiration I aimed for.
As you followers have found, my summer has been chock full of Lyme disease talks, healing workshops, book events and media. Somehow, I’ve managed to keep up with an athletic 15 year old son and seeing clients, though limitedly.
I have to say the summer finale on the book tour in Rhode Island was truly spectacular!! What an outpouring of attention, gatherings and momentum I experienced. I am completely impressed with the active Lyme support groups in the region, as well alert concern by people in important roles. Lyme literate practitioners exist in our tiny “ocean state.” Let me share some of the trip.
I’ve harbored a fondness for Rhode Island’s soft sandy beaches and warm ocean waters over the past decades, as most of New England has icy, cold water, too brisk to swim in for long. As an avid swimmer I favor their lovely beaches and fell in love with romantic Watch Hill and of course gilded Newport long ago. Their historied charm and stunning waterfronts are just magical. The rest of the state has been mostly a “drive through” experience for me.
I’d learned awhile ago, however, that like Long Island, Connecticut, Cape Cod and the outer islands, Rhode Island is Lyme infested and over populated by ticks. Their level of illness has run rampant.
A heartfelt thanks to Barbara Smith, Jane Barrows, Irene Weaver and Cynthia Leonard who made my appearances work so flawlessly.
Sunday, September 9, Westport Grange, actually in neighboring MA, hosted me with a rousing crowd of 85+. The South Shore Lyme Support Group is holding many lives together, suicidal feelings knocking on too many hearts. This picturesque township, layered with farmland, stone walls, and ocean beach grass is tick nirvana. We had many seriously afflicted attendees. Cable TV taped my two hour presentation and what a wonderful time we shared, as I introduced a powerful healing intention prayer for us all. You are wonderful souls.
Monday, September 10, Barbara whisked me off to WJAR, NBC TV, Providence, Rhode
Island. Barbara Morse Silva, a Lyme literate health editor and weekend anchor was eager to give attention to my Lyme recovery story in “Out of the Woods,” helping us gain more exposure with the epidemic. Though she spent a solid 15 minutes taping with me, the spot of course was a succinct two minutes, But, WJAR and Barbara were gracious and caring. Thank you!
12 noon. Marriott Hotel, Rotary Club luncheon. I was the guest speaker. One hundred fifty rotarians listened attentively to Lyme’s destructive forces. A great audience, and some families with tragically ill members were there. Cynthia Leonard is the go-to gal at Providence Rotary for Lyme info. They host several Lyme awareness events annually. That is terrific!
6 PM. St. Mark’s Catholic Church, Jamestown Rhode Island. Delightful Irene Weaver, seasoned Lyme vet Jane Barrows, and charming Father O’Neil hosted this event. Close to 100 folks came out and guess what…a first for me-I spoke from the pulpit!
This was a stunning moment for me to recognize how very far in my healing journey I’d traveled. Seven years ago I was so sick, too weak to stand unassisted, emotionally, physically and spiritually decimated. Death knocked on my door. It was a battle that summer to remain alive. And here I was now, a completely renewed, healed and vibrant being, standing strong and proud, bright and smiling, sharing my hard earned wisdom on the pulpit of a beautiful, grand and welcoming church. My message cannot ring out more clearly~ mending the spirit is just as essential as mending the body.
If I had not spent the solid three years doing the inner spiritual healing work, I do not believe I would have attained as complete recovery from advanced chronic Lyme disease as I have. Standing on that pulpit at St. Mark’s I felt the recognition from divinity- “You have earned your stripes, Katina. You are welcomed as a healing messenger, with higher knowledge.”
These words washed through me in the brief moments standing by the heavy velvet throne-like chair at the altar. Not a regular church goer by any means, though raised as a Greek Orthodox and Quaker mix (odd I know), as a spiritual being, I know when I am being “summoned!” Thank you God, angelic beings, spirit guides for bringing me far on this journey. I am open, I am listening and always, always I appreciate your guidance.
The evening was ripe with emotional Q&A, as so many have suffered for so long. Help is needed here and everywhere, as we know, for better Lyme organism diagnostics, more experienced practitioners and resources. Newport Lyme Support Group leader, Jane Barrows, is loaded with knowledge and contacts. What a fantastic group at St. Mark’s-MD’s, homeopaths, psychotherapists, nurses, herbalists, patients, and caretakers we were.
Thank you Westport, Providence, Newport, and Jamestown for welcoming me and my
efforts to being guidance and inspiration to your communities. Healing from chronic Lyme is hard work, requires a long time and an integrative medical approach, as well as spiritual recovery. I am blessed by the compassion and openness of our ever expanding Lyme disease community. This is a wondrous opportunity I am living.
Up from the ashes, you could say.
Meanwhile, I love Rhode Island more than ever, and may your gutsy attitude about this epidemic propel the momentum to bring about some real change-like a Lyme hospital such as Inanna House! I sense you may share the right collective forces to just make such a thing happen